This blog is on one of those under-reported Parkinson symptoms: psychosis.
I know, I know – I said that I was going to take a break from the blog. I still intend to, and plan on doing a sort of blog rebirth. I will explain more about that later.
Anyway, back to the topic at hand = Parkinson’s disease related psychosis.
I mentioned, not too long ago, that with Parkinson’s disease (and parkinsonisms, related illnesses), there are often symptoms that go un-reported to medical professionals. Often this is due to embarrassment, or simply due to the afflicted person, or his/her caretaker(s), not realizing that the symptom is due to the illness impacting the brain, or due to a side effect of a medication. Some may incorrectly attribute such as symptom to other factors and dismiss it.
“Psychosis” sounds like a scary word. One may envision the movie “Psycho”. Yet, it has little do with killing or violence. In fact, most people who experience psychosis are not killers, nor are they dangerous. Psychosis, simply put, is having experiences such as hallucinations (visual or auditory), and/or having delusional thoughts or beliefs (unrealistic or lacking evidence – i.e. “everybody in my family hates me, they are all plotting against me”).
Sometimes the hallucinations can be as simple as seeing something such as an object, animal or shape, flying by, out of the corner or your eye.
As for me, Pdude, I can’t personally say that I have experienced much or reoccurring psychosis. I did have a few sporadic experiences of seeing some things out of the corner of my eye at one point, which I attributed to an increase in my carbidopa-levadopa medication, which my doctor agreed with.
Recently, some people who are active in the Parkinson’s community met and provided ideas to a pharmaceutical company about how to best inform the Parkinson’s community, and create public awareness of Parkinson disease psychosis, especially since there are treatment options available.
One result of the collection of ideas was a suggestion to have a video made to create awareness. I would like to provide you with a link to that video (used with permission and courtesy of Acadia Pharmaceuticals, InVentiv Health, and the National Parkinson Foundation). I do not personally know the Person with Parkinson’s, nor his caretaker, but they did a wonderful job in the video of telling their story.
The following link is to that video: https://www.youtube.com/watch?v=ai-fFiLBg7c
Share this with someone who could use the information.
Remember, if you have any symptoms that are unusual, embarrassing, or that you are uncertain if they could be connected to Parkinson’s disease, please share these with your Movement Disorder Specialist, neurologist, or healthcare provider.