Pain is a topic that I sometimes resist talking about – personally. Maybe it pulls me out of gravitating toward masculine concepts of pushing through, not complaining, and accomplishing whatever I needed to despite this thing that people call “pain” (my learned experiences in martial arts, as well as experiences from my childhood may have contributed to my overlooking pain).
I would venture to say that everyone who has Parkinson’s disease either has already experienced, or will experience, some level of pain (either through dystonia, aches, cramps, etc.). Recently, a friend was surprised to hear that I sometimes have pain, after seeing me grimace after I had miscalculating a steep step downward, he remarked, “I didn’t know that pain was a part of having Parkinson’s?”
If someone were to ask me (in the past) if I were experiencing a lot of pain, I would have most likely responded, “No, not much at all”. However, I would have been forgetting about my bouts of shoulder pain, heal pain, cramps in my legs, cramping in my neck, aches in my wrists, pain in my fingers, etc. I probably would have been missing out on reporting the “waking up at night feeling like I was beat up” episodes that would also be considered as pain.
Yet, after my strong episodes of dystonia hit, there was no mistaking it – the guest that remained un-named, whom I tried to ignore, was right there, staring me in the face with each spell of curling in my feet, with each time I overexerted myself, and sometimes surprisingly random- it was my unwanted companion – “PAIN”.
Thank goodness that my pain is not constant. I feel fortunate that I don’t notice a constant severe pain. I hope it will never be constant nor severe enough that it becomes a dominant part of my Parkinson’s.
Speaking of overexerting, I somehow managed to acquire an umbilical hernia. I am to receive surgery to repair the hernia this upcoming Monday. I am concerned about the general anesthesia along with my medications (as well as issues of sleep apnea and other Parkinson’s aspects). The hospital was supposed to call me – and they haven’t yet, I guess I will call them Friday and see if I can speak to a member of the anesthesia team. If you believe in prayer or good vibes, please send something my way, especially on Monday. I can’t say that I am scared, but I think most people (especially those with health issues) have some worries when you place your life in the hands of others in such a direct way.
In your life, I hope you manage to get through the stress that life brings and keep your head up. Hang in there! Keep on!