I am happy for you if you were able to keep your symptoms at bay or get rid of them entirely by following some diet, drinking some smoothy, taking some vitamin formula, or doing some sort of alternative treatment. Seriously, I am. However, I do not want you to push me to try or buy your quick fix remedy.
Unfortunately, I have seen numerous websites, videos, and have even been emailed about such quick fix or miracle remedy items, with some people even trying to get me to endorse their products. It is not that I think of you who push a particular product, routine, or formula as being a lier, faker, or con-artist. At least, I would hope that you are not. I also know that some things work for some people and not others: perhaps it is placebo effect, maybe it is your unique body chemistry that responds to your wonder product or routine, perhaps you truly have found the cure – and scientific mainstream treatment providers have not acknowledged your discovered finding yet. Maybe, there are different types of Parkinson’s disease and your particular formula, routine, or whatever works for some or even many.
Quite frankly, I am sick of seeing or hearing about people who have drank certain smoothies, or who have taken a certain combination or herbs, and/or those who exercised their Parkinson’s disease away. I understand that exercise is beneficial for Pd, and some have delayed or minimized symptoms with exercise – and I try to do that as often as possible. I also believe that vitamins are important, especially if you are deficient in certain vitamins or your doctor believes you could benefit by some vitamin supplementation (and my Movement Disorder Specialist has me take several). I also understand that people would rather ingest something “natural” than something synthesized in a factory. I also get excited when I hear about researchers coming up with a potential “breakthrough” finding.
However, what works for some, doesn’t work for all, and could even be harmful. Even if the formula, exercise routine, or herb that you push doesn’t harm the person physically – there can still be damage done. For example, when I have told some uninformed people about my Parkinson’s, I have heard some say something like, “Yeah, I heard that there is a cure for that now.” Then, that person typically references either a very limited small study, a herbal formula, tells me of an exercise routine that I already know about.
I am not enthusiastic about being on Parkinson’s medication. Yet, I am more willing to trust my Movement Disorder Specialist than a person trying to sell me something on the internet. I have even heard many internet “experts” proclaim that Parkinson’s medications that are prescribed are all dangerous. I hope that is not ever found to be the case with certainty. Yet, once again, I trust my doctor more than I trust your snake oil.
Even a positive story contained in an internet news or TV news report about someone (who probably had mild or early Parkinson’s disease) who exercised and essentially minimized or delayed his or her symptoms – may create a false-belief in many people that could easily spread (and does) to employers, disability workers, etc. that Parkinson’s disease is no longer a disabling disease, thus contributing to further denials of disability claims for those who are severe enough to need services. Am I saying that there should not be positive stories – no, there should be positive stories shared to provide hope, as long as there is a disclaimer that not every person with Parkinson’s (especially those in advanced stages) is able to exercise-away, diet-away, or drink miracle herbal formulas that will make his or her Parkinson’s disease just go away.
I realize I am probably really ticking some people off. I know that those of you who push a product or who have had it work for you are probably very emotionally (and maybe financially) invested in your remedy product or routine. Again, I am truly glad if it worked for you. Just don’t push your snake oil miracle remedy onto me – I am not interested!