When you or someone that you care for was first diagnosed with Parkinson’s disease (or whatever illness that you have – that you can relate to with me), did you do an internet search? I know I did.
The thing is, if you want to find hope, inspiration and helpful information to alleviate your fears…you will find it!
If you want to know the bad stuff: (such as) what would, could, and/or probably will happen;, as well as, finding out those who died from this affliction and how fast it progressed…well, you will find that too!
I am sure that many of you discovered this website and my blog by doing an internet search.
Just remember: individual experiences will always vary.
You could focus on either the hope or the terror, and ultimately, you may not be “wrong” about either outcome.
As I have mentioned before, I would have never wanted my blog to portray a person who is gradually falling apart in front of you – which I believe may not only depress my readers, but also cause some to lose a sense of hope.
This hesitation to put anything unpleasant on this blog, was later balanced with my recognition that my experiences were mine only, and I decided that I also did not want to sugar-coat some of the real and unpleasant experiences that I was/am going through. Most of the time, I am able to balance a sense of optimism, while retaining realistic expectations, and therefore, have allowed my positive and negative experiences to flow out into my writing for the world to see.
Parkinson’s is a disease that progresses (although typically slowly), and furthermore, by definition, it is neurodegenerative, which means that it destroys the brain. Having support is very important! I also have some other suggestions.
My advice (for myself, as well as others):
- Try to keep an awareness of what you have around you that is good and that you do or could have gratitude for (the people, abilities, and things around you that you can be thankful for)!
- Don’t give up or give in, keep yourself as healthy as possible by staying active in whatever ways possible.
- Forgive yourself for the things that you have done that you feel bad about – remember, you are not perfect.
- Keep a perspective: some people will have a better experience with their illness, while some other people will have it much worse. On my worst days, I am still able to do many things that some people can not do. Likewise, not everyone will have to endure some of the negative things that I have experienced, or may not have these happen anytime soon.
So, before you do another internet search, consider what you are looking or expecting to find.
Are you prepared to handle it?
Will the outcome that you observe, and the information that you choose to focus on, be of help to motivate you right now?
Your life is happening right now, not in the future, so actively live it – take it in. Don’t get too lost in your thoughts, fears, and in researching information – because if you do, then you are missing out on life happening right now. If you are reading this, that means that you are still alive, so get to work living! Keep on!